Please DON’T SAY….

Things NOT to Say to Someone with a Chronic Illness

10. You can’t be in that much pain

9. Stop being lazy and get a job. …

8. You just want attention.

7. Your illness is caused by stress.

6. No pain then no gain!

5. It’s all in your head.

4. If you just got out of the house!

3. You are so lucky to get to stay in bed all day!

2. Just pray harder.

1. But you LOOK so GOOD


If you have ever been in Chronic Pain there are a couple of things you NEVER want to say to someone that is on a daily basis.  First of all the HELL we go through everyday of our lives is something you probably will NEVER feel.   The burning, stabbing, bee-stinging, glass shards on the bottom of your feet, knife blade cutting thru you.. If you have never felt these things 24/7 then you have no idea where or what it feels like to walk in “OUR” shoes.   I wish i had the chance to be LAZY and lay in bed all day, and no have a job.. but in our world, laying in bed all day, is NOT what you think, many times it is laying in fetal posistion crying in pain, or begging someone to just shoot us.. Really, if you think that is being lazy…Then So be it!!!

If this shit was in my head, or because I am stressed out again.. not something we want to be, because it just adds to the pain we are already in and creates more.  Oh, MORE PAIN.. how can that possibly be?  Well, take a look around.. I see people in pain a lot of days, but will i go up to them and say oh jeez, you look so good… Yeah MAYBE if i am looking for a black eye, bloody nose, or Fat lip…


We have all of this to thank to a lovely condition that we get from, stubbing a toe, getting stitches, slamming our hand in the door, with a hammer, breaking an arm, leg, yes.. the slightest things can get you the same Lovely disease that i have.. COMPLEX REGIONAL PAIN SYNDROME!!!


Never heard of it?  Look it up, Google, Yahoo it, whatever you need to do.. DO IT.. EDUCATE YOURSELF AND YOUR FAMILY MEMBERS!!!!!  THE MORE WE EDUCATE PEOPLE THE MORE OUR DISEASE IS GOING TO BE KNOWN… DON’T just say stuff like this to someone that is suffering so bad, ask, learn and EDUCATE.. you will be doing all of us a favor…



4 thoughts on “Please DON’T SAY….

  1. ranton2011 says:

    so very much love this! SO much! and you!

  2. Find Focus says:

    Thank you so much for making a list of all the things never to say! I have chronic fatigue & fibromyalgia and I usually get to hear, “I guess I have it too, then, ’cause I’m tired all the time!” Seriously – I want to punch every single person (even those that I care about or love) when I hear this. They should probably just be glad I usually don’t have the strength or energy to waste on hitting them. 🙂

    Good luck and blessings be with you and your family – remember you’re not alone.

  3. kshama says:

    Couldn’t agree with you more… the pain that is felt can never be shared. The least others can do, therefore, is at least try to understand, and desist from advising. I’m all admiration for your coping skills, and hope your time on the blog lets you ‘forget’ the pain for a while.

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